National Organization for Rare Disorders | NORD
3 days ago · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, we …
Financial Assistance For Patients With Rare Diseases | NORD
NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already adequately …
List of Rare Diseases | A-Z Database | NORD
What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies …
Centers of Excellence - National Organization for Rare Disorders
NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare Disease Centers of …
About Us - National Organization for Rare Disorders
NORD was the first national nonprofit to represent all individuals and families affected by rare disease. Today we’re the only organization working at the intersection of care, research, policy, and …
Getting Started - Understanding Rare Disease Information | NORD
Home / Understanding Rare Disease We acknowledge the hard work of families, caregivers and others with programs like NORD Caregiver Respite which allows people some time away while knowing …
Rare Disease Facts and Statistics | NORD
Rare Disease Facts & Statistics NORD’s Rare Disease Video Library provides brief introductions to rare disease topics for patients and caregivers. NORD collaborates with medical experts, patient …
Patient Assistance Programs - National Organization for Rare Disorders
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial …
Sotos Syndrome - Symptoms, Causes, Treatment | NORD
May 19, 2025 · Learn about Sotos Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
Sickle Cell Disease - Symptoms, Causes, Treatment | NORD
Mar 14, 2024 · Learn about Sickle Cell Disease, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources